Coach DrépanoCoach DrépanoTrévor user guide

Complete and simple guide

Getting the most from Trévor and the dashboard, role by role

This guide shows, step by step and with example screens, what each person can do. Every action states its full path inside the bot or the dashboard. Nothing happens without the patient's consent.

Two tools, one ecosystem

Trévor is the health assistant, inside the Telegram messenger: the patient tracks their health, learns, and exchanges with their care team there. The dashboard (on the web) is reserved for health professionals and coaches, to link consenting patients, send them questionnaires and follow the study.

Four roles

  • Patient: tracks their health in the bot, keeps control of their links.
  • Health professional: links patients, sends messages and questionnaires, sees the answers.
  • Coach: supports patients, offers programmes and events.
  • Administrator: invites accounts and approves requests.

Role🙂 Patient

Inside Telegram. Free, in 14 languages (French, English, German, Italian, Spanish, Portuguese, Arabic, Lingala, Kiswahili, Hindi, Wolof, Bambara, Yoruba, Hausa). The patient keeps control of their data and their links at all times.

In short: start the bot, do a daily check-in, learn, link the care team and exchange with it securely.
  • Everything runs on buttons, no command to remember.
  • Every link with a health professional is authorised by the patient and revocable whenever they want.
1

Start Trévor

Open the bot in Telegram and tap "Start". Trévor greets you, offers the language, then a few questions to personalise the follow-up.

Telegram › Search @TrevorDrepano_bot › Start
Trévor · conversation
Hello 👋 I'm Trévor, your health assistant. Shall we begin?
Let's go!Choose language
2

The main menu

After the welcome, the menu gathers the main features. One tap opens each space.

Trévor · menu
🩺 My health📚 Learn🤝 Support⚙️ Settings & help
3

Do your daily check-in

The quick check-in notes pain, hydration, sleep and mood in a few seconds. A streak encourages coming back.

Menu › 🩺 My health › Daily check-in
Trévor · daily check-in
How do you feel today? Your pain, from 0 to 10?
012345
4

Link your health professional or coach

The patient gathers all their links in one place: pending requests to authorise, active links to revoke, and inviting a new health professional.

Menu › 🩺 My health › 📋 My information › 🔗 My care team and coaches
Trévor · My care team and coaches
🔗 My care team and coaches
• Dr House (health professional), awaiting your consent
Decide for Dr House➕ Invite a health professional or coach

The patient can propose a health professional not yet on Trévor (name and address): an administrator approves, then the link is created.

5

Authorise a link, or revoke it

When a health professional requests a link, Trévor pushes the request with two buttons. The patient authorises, or declines. They can revoke an active link at any time.

Trévor · authorisation
Dr House (health professional) would like to be able to send you messages, reminders and questionnaires. Do you authorise this?
✅ AuthoriseDecline
6

Read messages and files securely

Free-text messages and files from the team never pass through the messenger. Trévor sends a notification and a link to the secure space, on a protected server, where the patient reads, downloads and replies.

My care team and coaches › 🔒 Open my secure space
Secure space · https://coachdrepa.no

Dr House (health professional)

Hello, here is your care plan 📎 plan.pdf
Thank you, received.
7

Learn and find answers

"The essentials in questions" answers frequent questions simply, by theme. You can also ask Trévor a free question.

Menu › 📚 Learn › The essentials in questions
Trévor · The essentials in questions
🧬 Understand🔥 Crises💊 Treatments🌍 Living with🔋 Energy and stress
🔒 Privacy: the patient sees their data, authorises each link and revokes it whenever they want. Messages and files from the team are encrypted and read in the secure space, never in the messenger. Trévor provides information and support, not a diagnosis.

Every feature in the bot, screen by screen

Trévor gathers all its features in four spaces, plus two quick actions. Each feature states its full path from the menu. Everything opens with one tap, no command to remember.

⚡ Quick actions

Reachable straight from the menu, to act in seconds.

  • Daily check-in: note pain, hydration, sleep and mood, with a streak that encourages coming back.Menu › Daily check-in
  • Stress check: a moment to name the stress of the moment and get a fitting calming step.Menu › Stress check

📚 Learn

Understand the disease and grow in autonomy, at your own pace.

  • Training: short lessons with quizzes and a tutor that answers questions.Menu › 📚 Learn › Training
  • The essentials in questions: frequent questions sorted by theme, with simple answers. You can also ask Trévor a free question.Menu › 📚 Learn › The essentials in questions
  • News: verified news on sickle cell disease and the other conditions followed.Menu › 📚 Learn › News
  • Malaria prevention: the protection protocol, useful when travelling or in a risk area.Menu › 📚 Learn › Malaria prevention
  • Therapeutic patient education (TPE) journey: a guided path to living better with the disease.Menu › 📚 Learn › TPE journey
  • Recommendations: personalised advice based on the profile and the follow-up.Menu › 📚 Learn › Recommendations
  • Useful contacts: associations, care centres and resources to turn to.Menu › 📚 Learn › Useful contacts

🤝 Support

Not being alone, leaning on people and a community.

  • Coaching: human support towards more autonomy, with a coach.Menu › 🤝 Support › Coaching
  • Prepare a call to my team: tell a life-threatening emergency from a non-urgent request and prepare the text of the call to the haematology secretariat; nothing is passed on to the hospital.Menu › 🆘 Crisis and emergency › 📞 Prepare a call
  • Life story: record your story and re-read it, a support for morale and meaning.Menu › 🤝 Support › Life story
  • Community: join the Coach Drépano Telegram channels to exchange and stay informed.Menu › 🤝 Support › Community

🩺 My health

The heart of the follow-up: information, progress and clinical tools.

  • Care and emergency card: the vital information to show first responders, ready in one tap.Menu › 🩺 My health › Care and emergency card
  • Alert my relatives: a message ready, opened in one tap in WhatsApp, to the support circle members in charge of alerting others or stepping in, with your position as an option (Google Maps link).Menu › 🚨 Emergency and care card › Alert my relatives
  • My information: profile, shared record (CARA) and above all My care team and coaches to manage links.Menu › 🩺 My health › 📋 My information
  • My progress: how the follow-up evolves over time, with a detailed dashboard on the web.Menu › 🩺 My health › My progress
  • My mental health: validated questionnaires (PHQ-9, GAD-7, PC-PTSD-5, ASRS, AQ-10), mood tracking and help resources.Menu › 🩺 My health › My mental health
  • Crisis risk: an estimate of the crisis risk over 48 h from the recent follow-up.Menu › 🩺 My health › Crisis risk
  • HemoSnap: an analysis aid from a photo, to help spot certain signs.Menu › 🩺 My health › HemoSnap
  • Useful places: a map of care and support places nearby.Menu › 🩺 My health › Useful places

⚙️ Settings & help

Personalise Trévor and keep control of your data.

  • Reminders: choose when and about what Trévor reminds you (check-in, treatment, hydration).Menu › ⚙️ Settings & help › Reminders
  • Language: switch between the 14 languages at any time.Menu › ⚙️ Settings & help › Language
  • My profile: update your personal information.Menu › ⚙️ Settings & help › My profile
  • My watch, my ring: link a connected device to enrich the follow-up automatically.Menu › ⚙️ Settings & help › My watch, my ring
  • My data: view, export or delete all your data, at any time.Menu › ⚙️ Settings & help › My data
  • Help: find the essentials, the link to this guide and the contact.Menu › ⚙️ Settings & help › Help

Role🩺 Health professional

On the dashboard, with a named account (name and professional address) for traceability. The health professional links consenting patients, exchanges with them and follows the study.

In short: sign in, link a patient, send them messages, reminders, questionnaires and files, see their answers, and consult the study's aggregated results.
1

Sign in

The account is created by an administrator. The health professional receives an email, then signs in by entering their address and clicking the link received (without a password), or with a password and code depending on the setting.

coachdrepa.no › Sign in › enter the professional address
2

Link a patient

On the "Contact a patient" page, choose the patient from a searchable list (by name or identifier), or "Prescribe Trévor" to invite a patient not yet registered. The patient receives the request in the bot and authorises it.

Dashboard › Contact › Link a patient
Dashboard · Link a patient

Link a patient

🔎 Search for a patient…
Ophélie (telegram-42)Send the request

or "Prescribe Trévor": an invitation code to give to a new patient.

3

Send a message, a reminder, a questionnaire or a file

Once the link is active, each patient has their card. Questionnaires cover the "check-in" (mood, stress, quality of life) and experience surveys (PREM). Files and messages are delivered to the patient's secure space.

Contact › patient card › Message · Reminder · Questionnaire · File
Dashboard · patient card

Ophélie (sickle cell disease) active link

Questionnaire ▾ Mental health · PHQ-9Send
File… care_plan.pdfSend the file

Safety: a screening questionnaire always keeps its safeguards (for example the support message for item 9 of the PHQ-9).

On the patient side: Trévor offers to answer now or later. If they postpone, it shows the questionnaire again at their next menu opening, losing nothing.

4

Read the answers and the conversation

The patient card shows "Answers received" (individual answers item by item) and the conversation thread in both directions. The patient's messages turn to "read" on opening.

Dashboard · answers and conversation

Answers received

Experience of the last consultation (PREM) · 20/09

Felt listened to → Completely · Time given → Rather yes

Conversation

Remember to stay well hydrated this week.
Thanks, feeling better 🙂
5

See the study results, aggregated and stratified

For a given questionnaire, the answer distribution of the consenting cohort, stratified by disease, country, sex or role, with the score statistics and CSV export.

Dashboard › Study › See aggregated and stratified results
Dashboard · study results

PHQ-9 · stratified by disease

Mean scoreOverall 7.0Sickle cell 6.4

Role🧭 Coach

The coach supports people towards more autonomy. They share the contact and agenda features with the health professional, and manage programmes and registrations.

In short: link and support patients, offer programmes, run the agenda, follow registrations.
1

Contact a linked patient

Like the health professional, the coach links a patient (searchable list or prescription) and sends them messages, reminders, review questionnaires and files, in the secure space.

Dashboard › Contact › Link a patient
2

Run the agenda and follow registrations

Create workshops, sessions and meetings, publish the agenda on the site and in the bot, and follow the registrants.

Dashboard › Agenda · Registrations
Dashboard · agenda

Workshop "Managing pain" upcoming

Thursday 6 pm · online · 12 places · 3 registered

Role🛠️ Administrator

The administrator opens the accounts of health professionals and coaches, and approves requests coming from patients. Accounts are named, never a shared key.

In short: invite a person, approve a patient's request, manage account status.
1

Invite a health professional or a coach

Enter the name, the professional address and the role. The person receives their access and activates it themselves.

Dashboard › My account › Accounts › Invite a person
2

Approve a request coming from a patient

When a patient proposes to add their health professional, the administrator is notified by email and by Telegram. They approve on the Accounts page: the account is created and the patient linked automatically.

Accounts › Patient requests › Approve and create the account
Dashboard · Accounts

Patient requests

Dr Aline Favre · aline.favre@hopital.ch · health professional · requested by Ophélie

Approve and create the accountDecline

Partners

Coach Drépano brings together expert patients, haematologists and researchers.

Coach Drépano Geneva University Hospitals University of Geneva HEG-Geneva, School of Business Administration Private Foundation of the HUG Shuttleworth Foundation Dalle Molle Foundation Innovation Booster powered by Innosuisse Swiss Digital Health Basel Area Business & Innovation FONGIT, Geneva foundation for technological innovation Microsoft for Nonprofits NeuTigers MIDATA.coop Swiss Sickle Cell Association Inserm AP-HP, Greater Paris University Hospitals CAREST, Caribbean research network on sickle cell disease and thalassaemia MCGRE rare disease health network RoFSED, Paris-region care network for children with sickle cell disease