Programmes
Therapeutic support and training.
Programmes run by expert patients and doctors or nurses specialised in haematology, for people living with the disease, their loved ones, care teams and future expert patients. Every registration helps fund the development of the Trévor assistant, keeping it free for patients, and the pay of expert patients.
One hour with an expert patient to move forward on your goal
You leave with a clear goal, concrete actions and a written summary, built with someone who lives with the disease, and you can keep going in Trévor between sessions.
See how the programme runs
A one-hour session by video call or phone, around a goal you choose: preventing crises, preparing a consultation, managing pain, fatigue, work or studies. Pay what you can for study participants, half price for members of the Swiss Sickle Cell Association, full hourly rate otherwise.
Fewer crises, with a plan that fits you
In six weeks, you leave with your own prevention strategy, your triggers identified and your reflexes for pain, built with an expert patient who lives with the disease.
See how the programme runs
You meet your expert patient for six 45-minute video sessions. Each session is prepared, then summarised in writing, and your goals are tracked in Trévor between sessions. A haematologist supervises the whole programme.
Take charge of your disease again, in a small group
By the end of the programme, you can explain your disease, anticipate a crisis, prepare a consultation and defend your rights, surrounded by a group that stays in touch afterwards.
See how the programme runs
The programme runs over eight weeks, with one module per week and a live workshop with an expert patient and a haematologist. A private discussion group supports your progress, and a certificate concludes the course.
Manage sickle cell disease with confidence
Your team recognises acute chest syndrome, treats pain according to guidelines on arrival, supports the paediatric-to-adult transition and knows which digital tools to offer.
See how the programme runs
The training takes place over one day, in your unit. The programme alternates clinical cases, applied pathophysiology and motivational interviewing, and concludes with a continuing education certificate. Participation costs 440 CHF per person in an open session, or 3 450 CHF for a team of up to ten people in your unit.
Turn your experience into a paid skill
You run workshops and support other patients within Coach Drépano programmes and partner centres, paid for each session.
See how the programme runs
The training comprises forty hours spread over three months, followed by a supervised facilitation placement within the Coach Drépano programmes. It concludes with the Coach Drépano expert patient certificate.
Solidarity rate of 50% for members of the Swiss Sickle Cell Association, for people without income or on disability insurance, on request. Payment in three interest-free instalments by bank transfer.
A question? A human answer.
david.issom@hug.ch, reply within five working days. A first twenty-minute interview is free, to choose the programme suited to your situation.