Trévor
Trévor
Personal health assistant. In Telegram. Free. Beta version.
Trévor teaches you the best self-management practices: what to do, concretely, and how, to live better with your disease. It draws on the collective intelligence of patients, clinicians and research, and artificial intelligence tailors every piece of advice to your situation. Designed by and for people living with a rare or neglected disease, first for sickle cell disease, with patients at Geneva University Hospitals. Dedicated profiles exist for sickle cell disease, thalassemia, Ehlers-Danlos syndrome and malaria, with more to come, extending to more common conditions such as migraine and chronic low-back pain.
See Trévor's features
- A simple menu. Crisis and emergency, My day, My health, Support and circle, Steps and travel, Learn, Settings and help: every function is two taps away, and the menu header shows your day, your current streak and the next step.
- The gestures that work. Learned from other patients and validated by caregivers, on hydration, sleep, pain and crisis prevention, each explained step by step.
- My dashboard. Pain, sleep, hydration and treatment day after day, as readable curves, to share with your doctor, exportable as CSV, JSON and FHIR.
- My watch / my ring. Oura and Fitbit live, Samsung Health and other Android watches through the companion app (automatic sending every 30 minutes), Apple Health and Google Fit by file: sleep, resting heart rate and night-time oxygen compared with your average, with a 48-hour crisis risk estimate, explained by the signals that weigh the most (experimental feature).
- Events and the monthly letter. Upcoming workshops, sessions and meet-ups, with one-minute sign-up, a reminder the day before and a notice as soon as a seat frees up; and, once a month by email, the DrépaNews digest, what is new in Trévor and the next events, with sign-up on this site or via /lettre in Trévor and one-click unsubscribe.
- My haemoglobin, needle-free. A photo of your fingertip lit by the flash estimates your haemoglobin level and, above all, its trend between two blood tests. Experimental feature, not clinically validated, calibrated on your laboratory values (less reliable on dark skin).
- My documents and my CARA record. Import a laboratory report or a prescription, as a photo or a PDF: Trévor extracts the useful values, and you export a summary to file in your electronic patient record (CARA).
- My care and emergency card. Remplie une fois et validée par ton hématologue, elle indique aux secours ton groupe sanguin, ton phénotype étendu, tes traitements et les gestes qui te soulagent. Tu l'obtiens en PDF prêt à imprimer (page A4 et format portefeuille), en image recto-verso à découper comme une carte d'assurance, et tu l'ajoutes à Google Wallet pour l'avoir toujours sur ton téléphone, avec un QR d'accès d'urgence.
- Alert my relatives. During a crisis, a ready message opens in one tap in WhatsApp, to the people in your support circle in charge of alerting others or stepping in.
- Reminders that adapt. At the time you choose, for the daily check-in and the weekly review; the reminder names your current streak and spaces itself out when you stay silent.
- Immediate, sourced answers. To your questions, with referral to your team or to 144 as soon as a warning sign appears.
- Drépadémie. Short training modules with quizzes, reviewed by a haematologist and an expert patient, including demonstration videos for adapted physical activity.
- Coaching, three doors. Coaching guided by Trévor (one goal, three small actions a week, a weekly review, for your health as well as your life projects: studies, work, couple, family, travel); a one-hour session with a coach, by video or phone (CHF 150, CHF 75 solidarity rate, pay what you can during the study); and the fika, thirty minutes in person, offered every month.
- Resources around me. Five families of places around your position, with directions in Google Maps or Plans for each: water, shade and coolness (drinking water, fountains, parks, pools, libraries, toilets, benches); care and emergencies (pharmacies, practices, hospitals, laboratories, defibrillators); blood donation (BeeMyBlood in Switzerland); moving and breathing (sports centres, outdoor gyms, forests and reserves); eating well and meeting people (markets, community gardens, community centres, places of worship). In Geneva, the City's official map of cool places, the APRÈS-GE directory of solidarity businesses and GenevaHelp, the map of free resources, are added. Offered on its own as soon as a heat alert comes in.
- Health weather. The seven weather factors documented as crisis triggers (cold, heat, temperature drop, strong wind, PM2.5, NO2 and ozone peaks), read daily against WHO thresholds; every alert of the day is shown, and the evening reminder keeps the most useful one.
- Recovery. After a crisis or a hospital stay, eight domains based on the WHO classification of functioning (physical activity, breathing, physiotherapy, nutrition, occupational therapy, return to school or work, cognition, mental health): for each, a concrete sheet, who to contact, and a weekly check-in. Offered on its own when you get back home.
- My points and games. Your everyday actions (check-in, treatment, positive moment) become points, levels and badges, never a ranking and never tied to your pain; a "True or false" game to learn while playing and a personal thirty-day challenge that Trévor counts on its own.
- My positive moment. In My day, one moment to note each day, what did you good, to build your resources as much as you watch your signals.
- On your wrist. On a Wear OS watch, the crisis button and colour tiles: health and treatment adherence, to-dos (treatments, water in litres, appointments with directions), mood, pain, circle and walking minutes, without taking out the phone. To add to the watch carousel, the “Today” tile sums up your crisis risk (experimental estimate), your form, your treatments and your next appointment, and the “My card” tile shows your emergency card, even without network.
- My life with the illness. Tell in one sentence the moments that help and those that weigh, watch them take their place on your timeline with your family, and receive a heading for the days ahead.
- My mental health. Log your mood, take stock with recognised self-assessments (depression, anxiety, post-traumatic stress, attention and ADHD, autism), a step-by-step toolbox, resources to build on your strengths, and guidance towards help, with a safety net when things are hard.
- Anticipate a hard moment. Note an upcoming appointment, exam or trip: Trévor offers tailored preparation and gives you a nudge the day before, because a foreseeable stress can be prepared for.
- My functioning. All your data grouped by component of human functioning (International Classification of Functioning, Disability and Health, WHO): what supports, what weighs, the trajectory over time, to share with your team.
- Offline, on Android. Designed for unstable connections, in Africa as elsewhere: the app keeps your notes (pain, mood, water, treatment, painkiller, crisis) and sends them when the network returns; a crisis can go out by SMS; your emergency card, your crisis plan and the information sheets stay readable without network. Your country's emergency number still needs checking.
- Rescue painkiller. The next permitted dose and the mg already taken, based on your prescription, even without network (an estimate, flagged as such).
- Appointments with an address. Each appointment carries its address (HUG by default) and directions in Google Maps or Plans; a reminder the day before and that morning, and a file for your calendar.
- Peer buddy. A supervised match with someone who lives with the same condition: messages go through Trévor, with no direct contact, and you leave whenever you like.
- Your data under your control. Database hosted in Switzerland (Infomaniak, Geneva), with logged access and erasure in one tap.
Good evening Amina, time for your daily check-in. How are you tonight?
Tired, my legs hurt a bit
Out of 10, how strong is the pain?
4
Noted. 🔥 6 days in a row. Drink a glass of water now and stay warm. If the pain rises, or in case of fever or trouble breathing, call the emergency number.
🆘 Crisis and emergency🌅 My day🩺 My health🤝 Support and circle🧭 Steps and travel🎓 Learn⚙️ Settings and help
Concrete benefits day to day.
Anticipate your crisesThanks to a check-in of ten seconds to one minute, each evening. Week after week, Trévor shows the signs that precede your pain, sleep, hydration, fatigue, and helps you act before the crisis. With a connected watch or ring, Trévor also estimates your 48-hour crisis risk (experimental feature at the research stage, not clinically validated: a low score never rules out a crisis).
Reliable answers, at any hourYour questions get answers grounded in medical guidelines and in the experience of expert patients, with their sources.
Faster care in the emergency roomYour care card, to be validated by your haematologist, tells the emergency team which treatment to follow as soon as you arrive. You wait less and repeat fewer explanations.
A better-prepared call to your teamTrévor helps you tell a life-threatening emergency (144) from a non-urgent request, then prepares the text of your call to the haematology secretariat: who is calling, why, since when. You make the call yourself; Trévor passes nothing on to the hospital.
A concrete benefit, whatever your situation.
Patients
You identify your triggers, prepare your consultations with precise data and carry an emergency card that speeds up your care.
Discover Trévor →Create my free emergency card →
Relatives and parents
You join the household of the person living with the disease, access their care and emergency card, learn to recognise warning signs and support them, while protecting your own balance.
Trévor for family carers →Health professionals
You follow your patients between consultations, with their consent, on an interoperable FHIR dashboard, and train your team in one day.
See the training →Screen and refer an at-risk couple →
A scientific approach, led by patients.
A scientific project
Trévor builds on work published in peer-reviewed journals, and its evaluation study at Geneva University Hospitals is awaiting the ethics committee's authorisation. Content cites its sources and is reviewed by a haematologist. This work rests on ten years of research, on the team's contribution to the Lancet Haematology Commission on sickle cell disease, and on published methods that other teams can reproduce.
Designed and steered by patients
The project is directed by a patient-researcher who lives with sickle cell disease, and the people concerned decided on the features at every step, from needs to mock-ups, tests and content. This participatory design has been formalised and published; it explains why Trévor speaks the language of everyday life.