FAQ

Your database is hosted in Switzerland (Infomaniak, Geneva data centre, ISO 27001 certified) and backed up every night in encrypted form. Names, messages, answers and watch measurements are encrypted in it; other values, such as the messaging ID, are not.

Your free-text questions, a summary of your follow-up without your first name and any photos or documents you send are read by Claude (Anthropic, United States). Other services (Google for voice and Google Wallet, OpenStreetMap for nearby places, Stripe for a payment) are involved only if you use them.

You can access it, along with the carers you explicitly authorise. A carer or coach with no link to you can open your file for 24 hours by giving a reason, and you are notified. Technical logs do not contain the text of your messages.

Yes, at any time, from Trévor's “🔐 My data” menu:

• view your data;
• export it as CSV, JSON or FHIR;
• delete everything in one tap.

An email to david.issom@hug.ch achieves the same result.

The “Enrol” button opens the enrolment page (two minutes). Payment is made online by card or TWINT, or by bank transfer to HES-SO Genève with the reference “Projet Trevor”.

Funds are received by HES-SO Genève and allocated to the Trévor project; they finance the assistant's development and hosting, its free access for patients, the remuneration of expert patients and the clinical evaluation.

• Payment in three interest-free instalments by bank transfer;
• 50% solidarity rate for members of the Swiss Sickle Cell Association without income or on disability insurance;
• full refund if you withdraw after the free interview.

Using Trévor is already the most useful contribution. As you use it, Trévor offers you two short pieces of feedback, each at a set moment:

• After a few days: an interest survey, anonymous, five minutes, to say whether the tool helps you. You answer it in Trévor, on the web, or with the /enquete command.
• After two weeks: the BUS-11 questionnaire, a scientific scale that measures ease of use (eleven questions, three minutes).

To get more involved, two separate paths:

• The test programme (/beta command): you sign a confidentiality agreement inside Trévor, then immediately access features under development.
• The TREVOR-PILOTE pilot study: you join a waiting list. Recruitment will start once the Geneva cantonal research ethics committee (CCER) has authorised it.

No. The test programme falls under service improvement and data-protection law: the agreement is signed in Trévor, data is processed with your consent, and experimental features are shown for information only.

The pilot study, by contrast, is research involving human beings submitted to the ethics committee; it starts once authorised.

In one click: Oura, Fitbit, Garmin, Withings, Whoop, Polar, Suunto, Strava, Ultrahuman and more. With the Android companion app: Samsung Health and Google (Health Connect) sync automatically, every 30 minutes; a button asks Android for permission to send in the background, essential on Samsung. By file import: Apple Health, Samsung Health and Google Fit, for those who prefer.

Trévor displays your measurements and, if you enable it, an estimate of your 48-hour crisis risk.

This estimate is an experimental feature, at the research stage, with no clinical validation to date; it is shown for information only, never as a diagnosis, and every care decision remains your medical team's. You enable it after a warning in Trévor and disable it at any time.

Yes. When you first set up Trévor, you choose your disease. Trévor offers dedicated profiles, each with its own questionnaires, warning signs and emergency card:

• rare or neglected diseases: sickle cell disease, thalassaemia, Ehlers-Danlos syndrome, malaria;
• more common conditions: migraine, chronic low-back pain, electromagnetic hypersensitivity.

For a disease without a dedicated profile, a generic profile remains available: you keep tracking, answers and the emergency card, without disease-specific questionnaires. For malaria, health professionals additionally have a guided management protocol based on WHO guidelines.

Yes, wherever Telegram works, in fourteen languages (French, English, German, Italian, Spanish, Portuguese, Arabic, Lingala, Swahili, Hindi, Wolof, Bambara, Yoruba, Hausa). Tracking, learning, the emergency card and live answers work from any country, and the emergency numbers adapt to the country set in your profile (verified for Switzerland, France and Europe).

Africa and patchy networks: the Android app keeps your notes without internet and sends them when the network returns. Local emergency numbers for African countries are not validated yet: Trévor asks you to check them with your care centre.

Two caveats: reviewed content prioritises Geneva and French-speaking Switzerland, and “Call my team” prepares the call to your own care centre; outside Switzerland, your own medical team answers.

Yes, on both. Trévor opens in Telegram, on Android as on iPhone: it is the most complete version.

The Coach Drépano app exists for Android only: widgets, Wear OS watch, offline mode. On iPhone, use Trévor in Telegram.

The Android app stays useful without internet. Your emergency card, crisis plan, information sheets and useful places are kept on the phone.

• A pain, mood, treatment or crisis logged without network waits in a queue, then goes out by itself when the network returns.
• In a crisis without network, a ready-made SMS alerts the people on your call list. It contains only your pain level, no location and no medical detail.
• The rescue painkiller is calculated on the phone, marked “offline estimate”.

The Telegram bot and the place search need internet. Local emergency numbers for African countries are not validated yet: the app asks you to check them.