Coach Drépano

Services

The services of Coach Drépano.

Coach Drépano supports people living with sickle cell disease, their relatives, their care teams and the organisations around them. Trévor, the assistant, is free for everyone. The human services on this page are run by expert patients, with the support of haematologists: they complement medical care and never replace it.

A principle of separation. Trévor is evaluated in a research setting funded by foundations and public institutions. Coach Drépano sells human time, programmes and training. Participants in the TREVOR-PILOTE study receive no commercial solicitation during the study nor in the six months that follow.

People living with sickle cell disease

Trévor is free and stays free. Human services come on top of Trévor for those who want support from a person who lives with the condition.

Trévor, the free assistant

Who it is for. Anyone living with sickle cell disease, in Switzerland, Europe or French-speaking Africa, from adolescence onwards.

How it works. You open Trévor in Telegram and answer a few welcome questions. From then on, it tracks your day in ten seconds, guides you through a crisis, keeps your care and emergency card and teaches you the condition in short modules. Trévor's guided coaching offers you a goal, three small actions a week and a weekly review.

Duration and format. No time limit, on your phone, at your own pace.

Price. Free, and it stays free.

Open Trévor

Peer coaching session

Who it is for. You, if you want to move forward on one precise goal with someone who lives with the condition: preventing crises, preparing an appointment, managing pain, fatigue, work or studies.

How it works. You book a slot in Trévor or on the enrolment page. The expert patient contacts you before the session with the call details. During the hour, you set a clear goal and concrete actionstogether, then you receive a written summary. You can carry on in Trévor between sessions. The coach never gives medical advice.

Duration and format. One hour, by video call or by phone.

Price. CHF 150 per session, CHF 75 at the solidarity rate, pay what you want during the study.

Book a session

Fika coffee with a coach

Who it is for. You, if you would like to talk for thirty minutes in person with a coach, with no set goal and no commitment.

How it works. In Trévor, you open “Coaching” then “A free coffee with a coach”, you choose the coach, their place and your time. You meet over a coffee on the second Tuesday of the month, between 5.15 pm and 7 pm. You come as you are.

Duration and format. Thirty minutes, in person, once a month.

Price. Free of charge.

Book a coffee in Trévor

“Fewer crises” coaching

Who it is for. You, if you want to build your own prevention strategy over six weeks with an expert patient.

How it works. Six 45-minute video interviews, each prepared and then summarised in writing. Your goals are tracked in Trévor between sessions and a haematologist supervises the programme. You leave with your triggers identified and your reflexes for pain.

Duration and format. Six weeks, by video call, with follow-up in Trévor.

Price. CHF 1,680, 50% solidarity rate on request, three interest-free instalments.

Enrol

Drépadémie, in a small group

Who it is for. You, and your relatives too, to take back control of the condition with a group of eight to twelve people.

How it works. Each week, a module in Trévor and a live workshop with an expert patient and a haematologist. A private group supports your progress and a certificate concludes the programme. At the end, you explain your condition, anticipate a crisis, prepare an appointment and stand up for your rights.

Duration and format. Eight weeks, one module a week in Trévor and one 90-minute live workshop.

Price. CHF 670, 50% solidarity rate on request.

Enrol

Short workshops

Who it is for. You, if you want to leave with concrete skills on one theme: managing stress, preparing for emergencies, the teen-to-adult transition.

How it works. An expert patient and a clinician run the workshop in a small group. No date is scheduled yet: you tell us which workshops interest you, and we let you know as soon as a date is set in the agenda.

Duration and format. One to two hours, online, in a small group.

Price. Accessible rate, announced with the date; free for study participants.

Tell us which workshops interest me

Relatives and families

You support someone and want to understand, know what to do and breathe a little. Here are the doors open to relatives.

Trévor for relatives

Who it is for. A parent, partner, brother, sister or friend who supports someone with the condition day to day.

How it works. The person with the condition invites you into their household from Trévor. You reach their care and emergency card, short sheets to understand the condition and the steps to take in a crisis. If they place you in their support circle, you receive their crisis message in one tap, with the information they choose to share.

Duration and format. No time limit, on your phone.

Price. Free.

Open Trévor as a relative

Coaching session for a parent or relative

Who it is for. You, if you support a child, teenager or adult with the condition and want to move forward on one precise question: the start of the school year, a trip, a transition, your own tiredness.

How it works. The same one-hour session as for patients, with an expert patient. You book a slot, you set a goal and concrete actions together, and you receive a written summary.

Duration and format. One hour, by video call or by phone.

Price. CHF 150 per session, CHF 75 at the solidarity rate.

Book a session
In preparation

Parents' group

Who it is for. Parents of children and teenagers with sickle cell disease who want to talk among themselves, with an expert patient.

How it works. This group does not exist yet. We are preparing its format with the Swiss Sickle Cell Association. Write to us to tell us what you expect: we will let you know when it opens.

Duration and format. Format to be defined, online or in Geneva.

Price. Price on request.

Write to the team

Care teams and institutions

You follow people with sickle cell disease and want to see their progress between appointments, train your team or integrate Trévor into your institution.

Training in peer support and sickle cell care

Who it is for. Nurses, primary care doctors, pharmacists and department teams who receive people with sickle cell disease.

How it works. One day in your department, led by an expert patient with the support of a haematologist: applied pathophysiology, acute complications, pain protocol from arrival, paediatric-to-adult transition, motivational interviewing, the expert patient's role and digital tools. Each block ends with a clinical case. Continuing education certificate, not an official CPD credit.

Duration and format. One seven-hour day, in your department or online.

Price. CHF 440 per person in an open session, CHF 3,450 for a team of up to ten.

Enrol my care team

Clinician dashboard and care card

Who it is for. Clinicians who follow a Trévor user and want to see their progress between appointments.

How it works. With the patient's agreement, you receive a named account and a sign-in link at your professional address. You read their alerts, reported pain, measurements and coaching. You review and correct their care and emergency cardwith them, then print it or download it as a PDF. Every access is logged and the patient can withdraw it at any time.

Duration and format. Online, no installation, at your own pace.

Price. Access is requested from the team; set-up for a whole department comes with a written offer.

See the dashboard

Integrating Trévor in your institution

Who it is for. Hospitals, reference centres, rare disease networks and patient associations who want to offer Trévor to their patients or members.

How it works. We study your need together: a dedicated instance or named accounts for your team, hosting in Switzerland, FHIR export and connectors to your patient record, team training, support at launch. Connectors stay switched off until an agreement is signed.

Duration and format. A first one-hour video call, then a written offer.

Price. Price on request.

Request a demonstration

Organisations, schools and employers

A pupil, an employee or a member of your organisation lives with sickle cell disease. We help you understand the condition and adapt the setting.

Sickle cell awareness session

Who it is for. Schools, employers, sports clubs, local authorities and any organisation that welcomes a person with sickle cell disease.

How it works. An expert patient explains the condition in simple words: the signs of a crisis, the steps that help, the situations to avoid (cold, dehydration, sudden exertion) and how to talk about it without stigma. Participants ask all their questions.

Duration and format. One hour to half a day, in person in Geneva or online.

Price. Price on request.

Request a session

Adjustments at school and at work

Who it is for. A school management team, a human resources department or a team leader who wants to adapt the setting for a pupil or employee with sickle cell disease.

How it works. We review the concrete situation with you: hydration and breaks, room temperature, absences for care, return after a crisis, informing the people around. You leave with a written, realistic list of adjustments, built with the person concerned if they wish.

Duration and format. One or two one-hour meetings, online or on site in Geneva.

Price. Price on request.

Write to us

Tailored workshop

Who it is for. Any organisation that wants a format designed for its audience: team, class, association, local authority.

How it works. You describe your audience, your objective and your time constraint. We build the workshop with an expert patient and, if the topic calls for it, a clinician, then send you the programme and a written offer.

Duration and format. Duration to be agreed, in person in Geneva or online.

Price. Price on request.

Describe my need

Future peer coaches

You want to become a peer coach. Here is the programme that exists today, and the one being prepared.

Expert patient training

Who it is for. You, if you have lived with sickle cell disease for several years, want to put your experience at the service of others and run programmes.

How it works. Forty hours of training spread over three months, then a supervised facilitation placement within the Coach Drépano programmes. You learn to listen, to run a workshop, to hold your place alongside clinicians without ever replacing them, and to follow the coach's charter. The Coach Drépano expert patient certificate concludes the programme. Afterwards, you run workshops and support other patients, with payment for each session. The dates of the next cohort are announced in the agenda.

Duration and format. Forty hours over three months, plus the placement; the venue and rhythm of the sessions are given at enrolment.

Price. CHF 2,440, bursaries possible through partners, solidarity rate on request.

Enrol
In preparation

Supervision for practising peer coaches

Who it is for. Trained expert patients who already support other people and want a framework to review their situations.

How it works. This regular supervision programme, in a group and with a referent, is in preparation. Its rhythm, duration and price are not yet set. Write to us if you want to take part: we will keep you informed.

Duration and format. To be defined.

Price. Price on request.

Keep me informed

Free resources

These resources are open to everyone, with no programme enrolment.

Associations and centres, by country and language

Who it is for. Anyone looking for a patient association, a reference centre or a specialised clinic near them.

How it works. In Trévor, “My care network” then “Find a professional” opens a directory of care centres, reference centres and patient associations in Switzerland, France and Belgium. Each entry carries its source and the date its official page was last reviewed. The site's “For patient associations” page presents our partners.

Duration and format. Freely available, in Trévor and on the site.

Price. Free.

See the associations

Emergency and advice numbers

Who it is for. Anyone who needs to know whom to call, in their country, in a crisis or for non-urgent advice.

How it works. Trévor shows your country's emergency number as soon as you set it in your profile. In Switzerland, 144 answers life-threatening emergencies, and the medical advice lines (Geneva 0800 116 117, Vaud 0848 133 133) answer non-urgent questions. In France, 15; across Europe, 112.

Duration and format. In Trévor, in the Android app and at the bottom of every page of the site.

Price. Free.

Prepare my emergency card

Reviewed content

Who it is for. Anyone who wants a sourced answer to a question about sickle cell disease, or wants to follow news about the condition.

How it works. Drépaquoi answers common questions with its sources. DrépaNews publishes a daily watch on science, guidelines and care. The Drépadémie modules in Trévor are reviewed by the HUG haematology unit.

Duration and format. Freely available, on the site and in Trévor.

Price. Free.

Ask a question

50% solidarity rate for members of the Swiss Sickle Cell Association, for people without income or on disability insurance, on simple request. Online payment by card or TWINT, or by bank transfer, in three interest-free instalments. A service marked “In preparation” is not open yet: we say so plainly, and we let you know when it opens if you write to us.

Write to the team See the programmes and prices

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